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June 5, 2009 / merlisser

MY HERO: Schuyler

My heroes for today are the members of the Rummel Hudson family: Julie, Rob, and Schuyler.

Schuyler was born with an extremely rare brain disease called Bilateral perisylvian polymicrogyria. This disorder means that. among other things, Schuyler will more than likely never be able to talk. She uses technology that has been dubbed “BIG Box of words” (it looks like a giant Speak n Spell) .

Despite all these disadvantages, Schuyler has managed to surprise her detractors over and over again. She has basic speech and a higher rating of intelligence than many doctors predicted. She has performed better in school than predicted.

She also manages to be an extremely cheerful child who loves monster movies and monsters in general. She also enjoys a punk rock wardrobe with chucks and brightly colored hair ranging from purple to red. She has an independent streak, evidenced in this her drawing a picture of her sad parents crying when she was to travel cross country on a plane to visit her grandma. SHe also has a funny sense of humor, making her dad dress up like a chicken for Halloween. (he did it too)

Her parents also have an amazingly positive attitude as they struggle to raise Schuyler to be the best she can be while learning the limits of her disability.

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One Comment

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  1. mariposa / Jun 9 2009 5:53 am

    Schuyler is lucky to have parents who have positive attitudes.

    Mariposa’s Tales NaBloPoMo June ’09

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